August 27, 2014

All change

Posted in August tagged , , , at 10:09 am by viewfromthisdesk

I was going to tell you about some fabulous bat related news that I got and also upload pictures from the hot wax treatment I had last week so you could all understand why I like it so.

But then this morning  I had some horrid news and I’m utterly numb.


The day after the twilight walk, I learnt that my friend had an aggressive form of cancer.  She deliberately didn’t tell me until after the walk because she wanted the walk to be full of giggles and smiles and fun.  She knew I’d get melancholy about her and how horrid this illness is.  We didn’t see each other much, but I was there when she got engaged and I was stood by her side on her wedding day in a frock.  She made her husband so very happy and we thought he’d never fall in love again.  I hadn’t seen her since our trip to Lundy for Christmas 2012 because I was struggling with my diagnosis, they were moving house and life generally got in the way.

We’d been emailing lots though.  She’d read this blog and send me a note about what she’d read and she’d share with me her latest appointment news, be it scan discussions or new drugs.  With her last email, they were talking about a new drug, a new one which would help give her more time whilst it halted the progression (as I understood it) but I learnt that she never managed to start this treatment and that she never managed to start her palliative plan either.

But, positively – she did get to spend her grandson’s first birthday with him recently and I know that would have meant the world to her.

So, if you’re reading this because you consider ourselves to be friends then thank you for sticking by me.  Thank you for being there for me whilst I’ve been grumpy and stroppy and stubborn.  Friends that don’t mind that you’re in your pyjamas and haven’t brushed your hair for a couple of days are special.  The sky gained a new star last night.



August 14, 2014

Another day closer

Posted in August, Health stuff tagged , , , , at 10:51 am by viewfromthisdesk

I’m a bit of a kid when it comes to Christmas and birthdays.  Not just mine but other peoples too.  I love finding stuff for people and watching them open the gifts, hoping they like it as much as I thought they would.  No pressure there then!  I get as much pleasure from that as opening my own gifts.  But I’m deeply impatient and hubby and my sister have learnt to not leave pressies in my vicinity without supervision!  I’m super excited about tomorrow, it’s not necessarily a milestone age but it’s another birthday that I’ve made in one piece, it’s another year fighting against this wretched condition.

Monday I had an appointment with the pain clinic.  I had to return my NHS TENS machine, but I’m super grateful to my Aunt who sent me a ‘spare’ they had at theirs.  I’m plugged into it as I type and am anxiously waiting for an Amazon box with new pads and rechargeable batteries in it!  She asked me how I was getting on with hydro and I had to tell her the drama that was the closure.  Embarrassingly, because I said they didn’t call me last week, she rang them up whilst I was there and had a bit of a strop on my behalf.  Cringe.

So yesterday, I made my way to Worcester.  Got there a bit early due to easy traffic so had another lovely hot wax treatment for my hands and wrists.  Then into the pool I went.  I don’t do swimming, I don’t do water really.  This is not an afternoon trip out that I am looking forward to.  But the physio lasses were really nice and kept an eye on me.  We start with stretches then a circuit of ten activities, then stretches and breathing and then they leave us to float in the dark to calm our bodies and minds.  That was the bit I hated the most.  I don’t like not being able to touch the bottom, so my fingernails have been left in the side of the pool.

I left wondering what all the fuss was about, how it was supposed to help me as I didn’t feel energised or tired or anything special.  But I got home and drank three pints of water and then fell asleep for two hours.  Oops.  Next week I’m going to take my aqua weights to try and build up my leg strength.

Other than that, bring on tomorrow!  Hurry up Mister Postman, both at home and at work.  I want to know if anyone loves me!  🙂

August 7, 2014

Hydro hilarity

Posted in August tagged , , , , at 9:32 am by viewfromthisdesk

Yesterday was week two of hydro and after last weeks debarkle I rang the physio department first thing to find out if the pool was open or not.  Had to leave a message which told me that someone would get back to me within 48 hours, but if they didn’t please could I call back.  Needless to say, I didn’t get a call so I didn’t make the drive over.  Regardless of how nice a hot wax treatment is, it’s not worth the stress of driving or the over-inflated parking prices; Worcester hospital is the only one I go to that doesn’t have concessions for blue badges.

I’ve spent three days home alone this week whilst hubby went away to north Norfolk.  I thought I would struggle and hate it but I didn’t.  I actually really enjoyed it.  I was able to keep the house tidy and clean up after myself and none of the cats or chickens have died on me so I can’t have done too badly!  I also managed to paint and nail-foil my toes and they don’t look too shabby.  Result.  I’ve asked him to go away without me again.  Frequently!

Words with Friends and a couple of excellent books are possibly to be congratulated for my sanity, especially since our second sky+ box has given up the ghost.  Not good.