February 28, 2018

February summary

Posted in February, Monthly update tagged , , , , , , at 1:05 pm by viewfromthisdesk

Continuing the theme of letting you all know what I’ve been up to, here is my February summary:

Theatre was ‘Flashdance’ at Cheltenham Everyman which was great. I also saw a live RSC transmission of ‘Twelfth Night’ which was very funny and an NTLive transmission of ‘Cat on a Hot Tin Roof’which was good but a bit thought provoking and raw for my state of mind at the time.

Cinema was ‘Three Billboards outside Ebbing, Missouri’ which was really good if a bit dark.

Music was a Rammstein tribute band and a band called ‘Satellite Down’

Films I watched were ‘John Wick 2’, ‘Table 19’, ‘Spinal Tap’, ‘The Last Word’ and ‘Seven Pounds’. I wouldn’t necessarily recommend any of them.

I’d set myself the target of reading at least one autobiography in February and in the end, I read two very different ones.  Books I finished were ‘The Husbands Secret’, ‘The Last Anniversary’ and ‘Three Wishes’ all by Lianne Moriarty, ‘My Autobiography’ by Guy Martin, ‘The Day you Saved My Life’ by Louise Candlish, ‘How to be Champion’ by Sarah Millican, ‘Things I’d Wished I’d Known’ by Linda Green, ‘The House on Sunset Lake’ and ‘The Proposal’ both by Tasmina Perry, ‘And Then it Happened’ by Linda Green, ‘The Other Woman’ by Laura Wilson, ‘My Everything’ by Kate Marsh, ‘At the Waters Edge’ by Sara Gruen and ‘Human Remains; by Elizabeth Haynes.  This last book was addictive, I couldn’t put it down even before the twist happened and then you were just waiting to see how it all overlapped and came together.

Health wise, it’s been a curious mixture.  The second lot of injections made my ears go purple and bruised and scabby which I wasn’t overly pleased with but three weeks on that’s all faded and they look okay again now.  I do need more people to notice how flat and tidy my ears look though!  I have another appointment on the 2nd March which I hope will be my last one.  I’ve spent over a months wages on each ear now and I really, really need the spending to stop.

I’ve not had any major headaches all month which I’m super pleased about.  I’m beginning to wonder if my headaches are linked to my mental health and stress levels, it will be interesting to see how the headaches behave over the next few months as bat season starts up again and I get busier.

I succumbed to the coughing-flu lurgy that has been doing the rounds, I don’t think many people escaped that.  It was tough to keep well during that; too much coughing would trigger an asthma attack and not enough coughing just meant I was choking on nothing.  My whole being felt like I’d been in a fight and I ended up with a few days off work just being horizontal and trying not to breathe or move.  My ME obviously wasn’t great during this time but I couldn’t manage anything to any degree.


January 31, 2018

January summary

Posted in January, Monthly update tagged , , , , , at 4:28 pm by viewfromthisdesk

In my end of year post I wrote about how I needed to be selfish, do more for me. My targets were:

* one theatre experience a month.

* one music or cinema experience a month.

* tea and cake with friends.

Unofficially, I also wanted to read more. A friend signed up to do a reading challenge of two books a month which I thought was brilliant but I didn’t set myself a target.

In 2018 I started keeping a diary, not a ‘Dear Diary’ kinda thing but more a medical tracker and emotional calculator. Brilliant for keeping notes on all the extra medications I took for whatever reasons. This was also useful for noting down the positives that happened in terms of film, theatre and books.

So my January summary:

Theatre was a transmission of Oscar Wilde’s ‘A Woman of no Importance’ which I enjoyed much more than I thought I might even if I did ask loads of questions. I also saw ‘Strangers on a Train’ at the Alexandra Theatre. This is a classic apparently and was turned into a Hitchcock film.

Cinema was ‘The Greatest Showman’ which was brilliant.

Music was an AC/DC tribute band.

I also found a new films on DVD by post provider which has been really good, I’ve missed Lovefilm envelopes and our broadband is rubbish so streaming films isn’t an option.

Films I watched were ‘White House Down’, ‘New Year’s Eve’, ‘Girl’s Trip’ (not recommended) ‘Love is Strange’, ‘Enduring Love’ (not even a very young Daniel Craig could make it tolerable) ‘Flatliners’ (the original 1990 version), ‘Pressure’ and ‘House’.

Books I finished were ‘The Ghost Fields’, ‘The Woman in Blue’ and ‘The Chalk Pit’ all by Elly Griffiths who is one of my favourite authors. Also ‘The Art of Hiding’ by Amanda Prowse, ‘Mystery in the Village’ by Rebecca Shaw, ‘Summer at Sea’ by Katie Fforde, ‘Diary of an Unsmug Married’ by Polly James which was so rubbish I almost gave up at least five times, ‘Precocious’ by Joanna Barnard, ‘The Swimming Pool’ by Louise Candlish and ‘The Wrong Girl’ by Laura Wilson.

I held a crafternoon for MIND which was fun. I raised just under a hundred pounds which was overwhelming. The just giving page is still open if you want to add to the fund. Just search for me on the just giving website. We decorated fairy doors, there were sequins and gems and flowers and pens and watercolour pencils everywhere. And maybe some biscuits – M&S ones no less!

Health wise, it’s been tricky. Post-op itching aside, the ears haven’t been too bad although I did announce at 3am about ten days after the op that I regretted having them done because I couldn’t sleep on either side which is my default and preferred sleeping position. The steroid injections were super painful and horrid. There are no words to describe how awful the experience of twelve injections in each ear actually is. As much as I complain about this process or winge about the cost, it has absolutely been worth it. I feel like I’m a different person, I don’t need to hide, I am worthy.

I have been struggling with headaches again though. First one was five days then three and a bit days long with one non-headache day between but I don’t think it’something I need to see the doctor about yet, I am fairly sure I know what caused them. My first incapacitating day was the 23rd so rather than dwell on how pants that day was, let’s focus on how I managed all those days in the month before without succumbing to the dark duvet palace.

The last week of January I picked up some sort of lurgy, the usual sore throat, bunged up nose, red eyes, sore sinuses. It’s hard being positive and cheerful when one looks and feels like crap.

My ME has been more tricky to manage, I’m struggling to maintain an even keel. I’m quite fed up, quite grumpy and emotional, I can’t stand crying for no reason but it seems to be a thing. I’m not controlling my pain levels, I’m not sleeping well, I’m just not managing.

So I’m back to a day by day, hour by hour plan. I’ll survive. I’ve gotten this far, one more day is possible too.

October 26, 2017

Music makes everything better

Posted in October tagged , , at 1:07 pm by viewfromthisdesk

A couple of weeks ago I went to a concert.  The usual challenges occurred but I had an amazing time.  Music is absolutely a magical and powerful thing.  I heard songs for the first time even though I’ve sung along with them on my ipod for years.  I heard lyrics in a different way, I laughed, I cried, I had my heart broken and left feeling happy and sad in equal measures.  It was just a beautiful few hours.

Since then, my ipod seems to be in tune with my emotional well being.  The songs it shuffles out are so meaningful and deep.  It really has helped me deal with some thoughts and issues that have been flying around my brain recently.  And I’ve gotten goosebumps during songs, I’ve cried as I’ve sung along, I’ve woken up to how I’m feeling about life, the universe and everything.

And then I found this totally by accident but totally at the right time.

I thought about doing this as a once a day thing on social media but then I realised I’d forget to do it one day or something else would happen and equaly it would get boring or lost.  So I’m doing it once, here.

And because this is my blog and I make the rules, I may have tweaked a couple of them.  And I may have more than one answer or used an album instead of a song.  However, my one self imposed rule is that I cannot use an artist twice which was super tough.

Day 1 – a song you like with a colour in the title
– Blackbird by Alter Bridge
Day 2 – a song you like with a number in the title
– Highway 20 Ride by Zac Brown Band
Day 3 – a song that reminds you of summertime
– Goodbye Earl by Dixie Chicks
Day 4 – a song that reminds you of someone you’d rather forget
– War of the Worlds Soundtrack *Note – this isn’t a person I’d rather forget but a period of my life
Day 5 – a song that needs to be played loud
– Enter Sandman by Metallica
Day 6 – a song that makes you want to dance
– My Life Would Suck Without You by Kelly Clarkson
Day 7 – a song to drive to
– Backstreet Symphony by Thunder / the entire Hysteria album by Def Leppard
Day 8 – a song about drugs or alcohol
– Whiskey Lullaby by Brad Paisley and Alison Krauss
Day 9 – a song that makes you happy
– Days Go By – Keith Urban
Day 10 – a song that makes you sad
– You Should Be Here by Cole Swindell
Day 11 – a song you never get tired of
– Abandon by Dare
Day 12 – a song from your pre-teen years
– One and Only by Chesney Hawkes *Note – as cringe as this is, it’s all I sang aged 10 and 11
– Blood on Blood by Bon Jovi *Note – this is my teenage years, not pre-teen.
Day 13 – a song you like from the 70’s
– Romeo and Juliet by Dire Straits *Note – I changed this to the 80’s
Day 14 – a song you’d love to be played at your wedding
– You are My Woman – Danko Jones
Day 15 – a song you like that’s a cover by another band
– Sound of Silence by Disturbed *Note – this was the first question I answered.  It’s beautiful.
Day 16 – a song that’s a classic favourite
– Summer of 69 by Bryan Adams
Day 17 – a song you’d sing as a duet with someone in karaoke
– Dead Ringer for Love by Meat Loaf and Bonnie Tyler *Note – not that I’d ever do karaoke
Day 18 – a song from the year you were born
– I was Made for Lovin’ You by Kiss *Note – thank you Google!
Day 19 – a song that makes you think about life
– Home by Daughtry
Day 20 – a song that has many meanings for you
– In Case You Didn’t Know – Brett Young
Day 21 – a song you like with a person’s name in the title
– Carrie by Europe / Lola Montez by Volbeat
Day 22 – a song that moves you forward
– Affirmation by Savage Garden
Day 23 – a song you think everyone should listen to
– 12 Redneck Days by Jeff Foxworthy *Note – I don’t think I should make anyone listen to anything because we all have different thoughts on music and taste.  I didn’t want to answer this question but this song is funny and is only played in December.
Day 24 – a song by a band you wish was still together
-November Rain by Guns N Roses *Note – I’m rubbish at whether a band is still together or not because in my opinion if it’s not the original line up it’s not the same band, so Bon Jovi without Richie Sambora is not Bon Jovi for example.  And Google says GNR have split up.
Day 25 – a song you like by an artist no longer living
– Hurt by Johnny Cash / Heavy is the Head by ZBB ft Chris Cornell
Day 26 – a song that makes you want to fall in love
– Faithfully – Journey
Day 27 – a song that breaks your heart
– Things my Father Said by Black Stone Cherry
Day 28 – a song by an artist whose voice you love
– Just Might (Make Me Believe) by Sugarland because Jennifer Nettles is amazing.  But everyone needs to hear Sky Hunter sing from StoneWire.
Day 29 – a song you remember from your childhood
– What About Love by Heart
Day 30 – a song that reminds you of yourself
– All Kinds of Kinds by Miranda Lambert / Strong Enough by Cher


Some questions were easier than others.  Some I really struggled with.  And there are artists that I’ve wanted to include but haven’t and feel guilty about that.  But I have 3428 songs on my ipod, it was a tricky task but such fun.  I’d like to know your thought on my list.  Did it make you listen to any new tunes?  What would your answers be?  Email me, introduce me to new artists and songs.  Share the magic.

August 24, 2017

Things are far from ideal

Posted in August, Health stuff tagged , , , , , at 12:56 pm by viewfromthisdesk

It’s no secret I like food.  You only have to glance at me to know food is high on my list of daily obsessions.  And these curves take some maintaining, it has to be said.

So when I go off food, it’s a glaring red light that I should pay attention to.

Since first thing Sunday, I’ve had a continual feeling of nausea.  I can’t taste anything and I’m just not hungry.  The smell of food is making me more queasy.  And I’m not sleeping.  Yeah, back to that hilarious combination of ME and insomnia.

I don’t know where this not sleeping, not eating thing has come from.  Friday night I had an amazing night at a concert seeing an artist I honestly never thought I’d see perform live.  Saturday I had a wonderful day at friends’ wedding – it was a fun day full of laughter and love.  So much positive energy from two excellent dates.  But Sunday I felt dreadful and I thought I was just suffering the effects of two big days so I just took it easy and rested up for many hours and hoped it would pass.

But then Monday rolled around.  I’m forcing myself to eat breakfast so I can take meds.  I’m not wanting to eat lunch or tea and I know it’s not an ideal situation.  This continues into Tuesday and Wednesday.  This morning (Thursday) I’ve established I’ve lost 3lbs since Saturday morning.  Usually I’d be delighted but I know that it’s not healthy.  My jeans aren’t fitting and I just feel empty.  Lost even.

This morning after yet another rubbish, broken night of not-sleeping, I’ve resorted to taking my anti-nausea meds.  These are kept in my emergency crash box so that’s not a good start.  I ate porridge so I could take them but I couldn’t taste it and I didn’t enjoy it – I was eating because I had to.  And then I made a sandwich for lunch which I have no intention of eating if I’m honest.  I was dry heaving whilst making it, the smell just turned my stomach.  The thought of eating it is horrendous.  Maybe I’ll convince myself and those around me that I’ll eat it for tea.

It’s one thing to not be eating.  It’s another to throw not sleeping into the mix as well.  I’m at the crazy point of bat season.  I have weeks left before I too can hibernate until spring.  I need to be vertical and coping.  Not sleeping is not what is needed right now.  And to have this many awful nights in a row (6 and counting) is worrying me.


And it’s a big but.

I don’t feel tired.  Usually after just one bad night, I’d be asleep in the afternoons, I’d be unable to go to work, I’d be unable to speak properly.  At the moment, none of that is happening, I’m just not sleeping.  Don’t get me wrong, I’m not saying I feel well, I just don’t feel as bad as I should be.  Aside from the ever constant metallic I’m-going-to-be-sick taste and the churning in the stomach sensation I am remarkably upright.  It was even commented on survey the other night that I’d not been seen so bouncy and looking so good for a couple of years.  It was high praise and I basked in it but knew it’s not the truth.

So I don’t know what is going on with me right now.  All I know is it’s far from ideal.  I’m not asking for hints or tips on sleeping and/or eating, I’ve tried them all I assure you.  I’m just letting you know I’m not right and your support and witty messages are appreciated.

July 28, 2017

When the darkness wins.

Posted in July tagged , , at 4:14 pm by viewfromthisdesk

This blog post has been three days in the writing.  And I’m still unsure if I’ll press ‘publish’.  So if I do, please know that as tough as this may be to read (and I am fully aware that I may be imagining the strength of my writing skills there) this has been a million times tougher to type and be fully honest.

Recently there’s been celebrity suicides and people react with ‘but they had it all; fame, money, family, why would they need to do that?’ and it’s sad.  These people may have had what we perceive to ‘be it all’ but it wasn’t enough to make them feel worthwhile.  The glass facade shattered and let’s face it, reality sucks.

Someone (a total stranger) wrote something on a social media site last week about their suicide attempt.  To try and explain that they weren’t a coward, that they weren’t looking for an easy way out because in the moment that they were trying to cut their wrists (and it wasn’t that simple, their description was awful and raw and real) it was the strongest they had ever been.  That it hurt and it wasn’t quick but it was just the last thing they had control over.  It was a powerful piece of writing and it’s stuck with me.

I’ve never tried to kill myself.  I’ll put that out there now.  But I have often felt that it would be easier to just not be alive.  I personally feel there’s a big difference between wanting to die and wanting to not be alive but you may feel they’re the same thing.

All my life I’ve lived with not being good enough.  My Dad would punish me physically when school reports came home and it wasn’t all A’s.  Apparently A for effort doesn’t count because even though the teacher felt I’d tried my hardest in everything, if I hadn’t gotten top marks, it didn’t count.  When we moved up here, I was told by the people we lived with that anything less that straight A’s or A*’s was letting my parents down, that I’d failed them.  On GCSE results day when other friends were getting money or meals out, I was asked why I’d only gotten 2 A’s and then 8 B’s.

It wasn’t good enough.  I wasn’t good enough.  I was a blue screen error message.

On school awards night, I asked if they were proud of me.  The reply was that they’d rather I was at home studying to get better marks than collecting awards.  They went on holiday rather than support me during my A Level exams.  They didn’t take me to university like every other family in my place of residence.  They charged me £60 rent when I returned for a week the first Christmas. And then my worst offence – I dropped out of university: I was a failure, a disappointment, an embarrassment.  And although I got my degree with the OU, that didn’t count.  It wasn’t enough.

I wasn’t enough.

I’ve never been enough.  I’ve never made anyone proud.  Or at least, no one has ever told me.

At a family wedding a few years ago, the father of the bride gave a speech about brave men marrying into the family.  My Dad was not included in that speech, nor my husband.  I took that personally because if they don’t count, then I don’t either; a reminder of how I’m not enough.  I’m sure he didn’t mean it to be like that and it’s not as if I could have interrupted the speech and asked about it.  A wedding is not the place to question details.  And I can’t ask now because the moment has passed.  But it sits in my brain, a sharp stick poking away.

At school I didn’t fit in because I spoke funny / because I didn’t have divorced parents / because I wasn’t allowed to go out after school / at the weekend / use the phone / go to my end of year ball / get a job / came from a different school to begin with.  At uni I didn’t fit in because I had no family visiting me to take me shopping for food / help me settle in / because I’d worked damn hard for the financial scholarships that kept me afloat / was using uni as an escape.

Society views me as a failure.  The abuse I’ve received because I’ve not had kids is truly awful.  I’m a waste of a human being, a waste of air, what is the point of being alive if not to push out children?  No one will love me because I’m selfish, I’m not fulfilling my biological purpose.  And these are your everyday human beings, not religious fanatics who want to populate the world for a higher purpose.  I can ignore all this stuff because it’s utter drivel but it does get to you.

Historically the whole ‘when is he going to propose’ bombardment at events really niggled into my brain.  Really upset me and made me think that I wasn’t enough for him to love me that much.  I wasn’t good enough, wasn’t acceptable to his long term plans.  And then when we did get married it was that pitying ‘Oh, but you had to ask, not the same really, is it?’

When I work away, I’m ‘not the usual girl’ or I get ‘what are you doing here’ or ‘oh, it’s you’.  I’m not included in conversations, I’m ignored and treated less than politely.  I’m working my socks off to help them out but I feel like something those socks trod in.  There’s no support or gratitude, I may as well be painted the same grey as the walls.

I’ve felt ignored and left out and simply not enough and pushed to one side all my life.  Intentional or not, my feelings are mine and no one can tell me they aren’t real.

And so, thinking that my not being alive is somehow better, is not surprising.  If I can’t be enough then what’s the point?  If I’m not enough, then someone else could be instead.  I don’t feel worthy.  I don’t feel worthwhile.  I am an appallingly bad wife, terrible sister/rubbish friend/disappointing niece/absent cousin.  The doctors just gave me anti-depressants when I spoke up.  They don’t change anything, it’s not going to re-program the last thirty-odd years.  Counselling was tried at uni.  I can’t afford it now and I dislike speaking these words out loud.  Hiding behind this keyboard is as honest as I can be.  Don’t ask me if I want to talk, I will tell you I’m fine.  I can pretend I don’t know who is reading this, that you are not real.  That I am typing to empty my brain temporarily and these words will fade like I was writing in lemon juice.

The darkness that lingers in my brain never goes away.  I do try and ignore it but I’m only human, I’m still struggling.  The other week it got particularly bad.  I didn’t want to leave the house, didn’t want to see people, not even people I’ve known forever.  I didn’t want to have to talk to anyone or look at anyone – or even worse be looked at – or interact.  If Pirate Cat were still here, we would have set up the duvet palace and she would have been on Chief Cat Guard.  It’s never gotten that bad before and with hindsight, I’m concerned with how much that darkness overwhelmed me.  I’ve never shut myself away like that previously.  And yet, it happened and I fully expect it to happen again.  I’m not scared of it happening again, it’s not an issue for me but it’s a new thing to contend with.

Suicide for me is not an option for purely practical reasons; I dislike swallowing pills even though I’ve taken enough over the years.  I dislike pain even though there’s a constant white noise of it.  I couldn’t jump off or in front of.  I wouldn’t be so selfish as to have that memory imprinted on someone else for the rest of their lives.  I could not do the deed.  The darkness may overwhelm me but it’s not going to push me over the edge.

Suicide is a decision of absolutes.  There is nothing else after.  And it may be the one thing that a person has control of when the rest of their life is a whirlwind of madness.  And it’s going to be that they feel that their family, their children, their friends are better off without them.  I’ve felt that.  I’ve absolutely felt that very way.  No one would miss me as I don’t contribute anything to their lives – what can I give people the state I’m in?  Apparently, my illness is not real, I’m attention seeking, I’m making it up.

Please don’t think this is a new surprise thing – I have been honest about how I feel.  I’ve told hubby on many occasions that I’d rather not wake up one morning because I feel worthless.  I feel more of a burden that a contribution.  This isn’t something I’ve hidden from him.  I’ve told him he needs more than I can give.  And yes, he’s told me I’m daft and I shouldn’t think like that but my brain doesn’t hang onto that fact, it focuses on how crap I am, how I can’t have a proper job, how my friends and family don’t invite me to stuff because I won’t be able to go anyway.  How all this medical stuff has made me different and useless.  In the early hours when I’m not sleeping my brain goes utterly mental shouting horrible things and I listen and I save them on a loop reminding me over and over again that I am pointless.  A waste of air and cells.

I don’t know anyone who has committed suicide.  As far as I am aware, I don’t know anyone who has tried either.  Maybe I do but they keep it so well hidden.  They are stronger than I know.

Growing up I was told that suicide is the cowards way out when someone doesn’t want to face up to their problems.  Suicide is not an easy way out.  It cannot be.  You make that decision knowing the absolute tidal wave of reaction that will be triggered.  You know that those around you will be hurt beyond all comprehension but you feel that the hurt will be better than the reality.  You’ll change their lives forever but you honestly think that’s the best thing for them.  You make the decision and you follow that through.

So I understand what the writer meant when they said that in the act, they were the strongest they had ever been.


I am not strong.

November 1, 2016

Grieving for the past

Posted in November tagged , , at 10:45 am by viewfromthisdesk

I just stumbled upon an excellent blog post entitled ‘Grieving for me because of M.E.’ and it was blinking brilliant.  Totally resonated with some of the thoughts and feelings I’ve been fighting with these past few years.  Hubby and I often talk in terms of ‘before’ which is kinda like modern societies BC / AD time splits.  ‘Before the diagnosis’ would be a good title but I was struggling for a few years before that actually occurred. ‘Before’ is all and more of these.

Before I was ill.
Before I got tired.
Before things hurt.
Before I couldn’t walk unaided.
Before I had to give up alcohol.
Before everything had to be considered in minute details as to how/when/where.
Before people thought I was unreliable.
Before working full time wasn’t possible.
Before being a burden on those around me.

I know I try and laugh and joke and use humour as a distraction tool.  If I’m making you laugh with me, then you won’t notice the pills I’m swallowing or the furniture I’m clinging onto to walk around.  You won’t notice the pain dulling my eyes or the strappings and supports that are holding me together.  If I make my crutches colourful and exciting they’re an accessory not a burden.

And some of you gorgeous, lovely people have constantly told me to be honest.  To trust that you won’t run away and you’ll stick with me no matter how bad.  But I don’t want that.  I want before still.  I want to be the person I used to be.  I am grieving for before.

October 11, 2016

Long time coming

Posted in November tagged , , , , , at 12:01 pm by viewfromthisdesk

It’s bizarre how fast this year is progressing.  Yesterday was apparently eleven weeks until yuletide which is scary enough to remind me I haven’t even given it a thought yet.  I was also reminded that two years ago I was in a pretty bad place and my meds had been increased significantly and I wasn’t sure how I felt about that.

With a condition like ME, nothing is ever constant.  There never seems to be a pattern or a routine that gives you the heads up on anything.  I am aware of situations that don’t help my physical or mental well being but these are not set in stone.  For example, last week I was temping and this usually makes me really, really ill.  The long days, stressful working conditions, bright lights, driving at busy times, it all combines to usually leave me in bed for the weekend at least.  Last week was particularly mental.  It was so busy and there was no one else to take the pressure off (usually I can shout that I’m locking myself in the loo to get away from the phones for five minutes and someone else will cover them) and I ended up working ten hours on the one day.  It wasn’t fun.  And then sensibly, I decided to throw my flu jab in the mix of a crazy week.

I have a jumble of feelings about the flu jab.  I have it because it’s offered to me and I don’t usually get anything free so I’m inclined to take it whilst it’s there.  I have it because my immune system is shot to pieces and so if I got any sort of bug it would flatten me for a couple of weeks.  I don’t like it though because it usually ruins me for a good couple of days.  Last year I had to miss a gig we had planned to go to because I was so nauseous and wobbly.  This year I was expecting to feel rubbish but figured that it would be combined with post-temping rubbish-ness and I’d just get it all over with in one hit.  This year I’ve (so far) felt okay.  Aside from the usual lumpy sore arm, it’s been okay.  I like this current mix of poison that they’ve given me.

I seem to be managing in the short term at the moment, I do feel that I’m taking a micro-management approach right now.  Rather than trying to plan in scales of weeks or months I am literally going from day to day, half day to half day.  It seems to be working for the time being.  It does mean that there are extra clothes/strappings/hot water bottles/tens machines scattered around the house but it’s how I’m coping for the moment.  I have a huge amount going on in my life for the time of year, usually I’m enjoying the leaves changing and the time to sit with Pirate Cat but that’s not possible right now.  And maybe, because I’m so busy trying to do so much is why the micro management is working because I’m trying to be well, or at least vertical, for so many things that I need to just get through one thing after another.  I’m sure it will all come crashing down in a pile of tears and ibuprofen gel and whatnot but for the time being, I’m surviving.

May 15, 2015

May 16th, one year on

Posted in Health stuff, Weight Watchers tagged , , , , , , , at 11:02 am by viewfromthisdesk

This time last year I was fretting somewhat about walking 5km.  It turned out alright in the end – aside from the outfit I chose to wear which is now buried in a cupboard somewhere I’m sure.  I can forget about the outfit when I remember how much money I raised with your generous help.

I decided not to do the walk this year; not because I’m a heartless individual who doesn’t care but because I just couldn’t be bothered to get off my bum and actually *do* something:  I’m lazy.

Rather than asking you for money for May 16th, I’ve been asking for stamps, for ribbons, for spoons.  It’s hardly comparable to exercise but honestly, it’s how my life is right now.

I’ve not jumped on the scales recently but I know I’ve put on loads of weight.  My last number display put me at the same weight as my wedding day which I’ve always considered to be my heaviest.  I know the numbers are bigger now.  But I’m totally unfazed by it, which isn’t great.

I know I’m more than curvy again now, but I simply don’t care.  I honestly don’t care.  I’m happy with what I’ve got.  Don’t get me wrong, I’m not shovelling bags of crisps into my face (I can’t remember the last packet actually) and I’m not scoffing takeaways 24/7, I’m actually eating reasonably but I’m just not active.  That’s the big issue.

I ache all over, I’m constantly attached to a heat pad or TENS machine.  I’m tired and I simply can’t be bothered.  Am I using my M.E. as an excuse?  No, I don’t think so.  I’m not going to walk 5km and cause myself to sleep for a fortnight and have to see a physio again.  I need to find something that fits around day work and night surveys and doesn’t hurt or exhaust me.

January 20, 2015

It’s all about the mugs.

Posted in January tagged , , , at 12:20 pm by viewfromthisdesk

My last entry to this online diary stirred up quite some interest.  Not in me of course, but in the mugs that I’d been talking about with such praise.  I feel I need to share the love, so you can all understand why I’ve been wittering on.

The first mystery parcel contained ‘Goddess’ and ‘Overworked/Underpaid’.  An additional mystery parcel last night contained ‘The Boss’  I have the bestest friends, I really do.

I’m going to save the box that one came in to put the contents of my 2015 gratitude jar into.  That way, the box is an instant reminder of a good thing as well as the notes within.



The others I desire can be found on my Amazon wishlist:


Or the actual website for the whole range by this artist can be found at:



I’m still wobbly but down to one crutch though which is progress.  Being smothered in ibruprofen gel each night isn’t quite my version of romance, but one can’t be picky at my age.  Managing as well as can be expected which is good enough for me today.

January 8, 2015

Being honest

Posted in Health stuff, January tagged , , , , , , , , , at 1:44 pm by viewfromthisdesk

I’ve being going on for years about how I need to be more honest about how I’m feeling and how I can’t use the phrase ‘I’m fine’ to cover all my lies.

So, deep breath ….. today is a bad day.

There you go.  It’s out there.  It’s flying around like an enormous neon sign, telling the world that I’m really rather useless and pathetic and rubbish.

Last night I got home from work feeling okay, I fetched firewood, lit a fire, watched some tv and then slept for nearly two hours.  Spent the rest of the evening feeling groggy, nauseous and cold.  Went to bed and slept for twelve hours.  Failed to get up for work at the appropriate time and didn’t wake until 11.59am.

I now feel utterly rubbish.  Weak as a kitten, groggy and fuzzy and ache like I’ve been in a fight.  Really light sensitive and my hands and wrists are KILLING me.  Couldn’t put my work trousers on because after fastening my bra, I couldn’t work the zip and buttons.  So I’m in the office with soft trousers and a jumper.  Get me looking professional as heck.

If ever there was a time I wanted to be able to crawl back into a cave and hide and cry and pretend that reality isn’t happening, this is it.  Honesty is horrid.

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