September 8, 2022
The headache clinic rang
Back in February of this year, the 21st to be precise, I had a phone call with the headache neurologist; Dr Sinclair. He said the waiting list was super long for botox and he was putting me forward for a CGRP treatment plan.
CGRP are neuropeptides. Or monoclonal antibodies. Whichever term you pick, it’s magic goo that I inject myself every month for six months to make the chronic migraines go away.
Or so I thought.
I got the letter on Tuesday for a telephone appointment today. Except I’m temping this week so that’s a tad tricky. Thankfully I sorted phone cover with the lads and managed to take the call.
Which lasted four questions.
Turns out that my lack of circulation and known Reynauds means I’m not eligible for CGRP. And the nurse acknowledges this should have been picked up before today. That I should have gone onto the botox list back in February.
Not gonna lie, I cried. That poor woman couldn’t do anything.
Eventually, she found a slot in her botox clinic and has somehow managed to over-ride the system and get me in for Monday 5th December at 9am. So yey for an appointment. Not so yey for getting to the QE in Birmingham that early in the day!
So maybe, just maybe, after three years of waiting and being off my head meds, I might get some relief. After the 32 injections in my head and neck have worn off …….. eeek!
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